Journey Love Hoffman was given seven days to live.
Born with an extra chromosome, Journey was diagnosed at birth with Trisomy 13. The rare genetic condition, also known as Patau syndrome, affects about one in every 10,000-16,000 babies and is described as “incompatible with life.”
About 90% of the babies who survive through birth die in their first year.
But Journey turned 2 this December. She has several surgeries ahead of her as her family navigates continuous health challenges and barriers to getting help, yet they remain grateful.
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